MS

Impatience by Neil Blake

If you know me personally, depending on how close we were, you may know how impatient I am, at least today. I’ll be honest, I don’t think I was as patient as I seem to be today when I was younger or was I? But here we are. See, as I’m writing this at this very moment, I can’t remember if I was as impatient as I think I used to be and definitely am today! One thing I definitely do know is how aware of how much waiting there seems to be in my life these days.

The image above is going to be used to inspire me and get my creative juices flowing next time I decide to do my next painting, which I really really hope is going to be fairly soon! I have gotten a bunch of new ideas and have found my source of inspiration.

Now, is this simply because I walk around all day medicated (or high) looking for something to fill my time with or is it something else? You see, that’s one of the things I love about my blog, even if I don’t often get a like to my posts or not! That’s probably because I’m blogging about my journey with these complex and thankfully rare illnesses and therefore have an outlet!

I haven’t painted in a little while and I’m really starting to feel like that needs to change soon! Hmmm, looks like I’ve got some thanoking about it and planning to get started on. But, until then, I am going to smoke a joint and hit the sack!

Early Night by Neil Blake

As I sit here writing this post at 6:00am, I look at the time and it is all starting to make sense…. An early bedtime, I think it was around 8:30pm, or 9:00pm when I went to bed last night. I really don’t understand why I am always up and tired so damn early these days until I remember my symptoms… fatigue I definitely a major one!

I used to drink a lot of coffee, but have been noticing that it ends up making it so much more difficult to urinate! Either that or it is my MS, but regardless of the true reason, I’ve been having problems and not liking it!

Another thing that might also not be helping me with the fatigue is the amount of walking I’ve been doing now that it is warm enough outside. Although, I did just add up my walks since last Monday and found that I’ve walked 35.7km, which I actually way less than my goal was, but I can only do so much!

Anyway, it’s time to get upstairs and get myself a fresh cup of coffee and start my day?

Beautiful People by Neil Blake

Adjustments.jpeg

I was listening to Spotify yesterday when all of a sudden I recognized an old favourite of mine by Marylin Manson called the title of this post… It was awesome and the timing couldn’t have gotten anymore… is pertinent the word I’m looking for? Given the fact that I’m in Montreal and that it made me think of an ex-girlfriend who is now a successful real estate agent in the Toronto area. I was into punk music during my early high school days at Lo-Ellen Park.

Update: Finally found it again!

When I look and see where I am in life today with where I can from, I don’t find anything to be to fucking happy about… and here’s the best part, of it all to me is: it was all stolen from me by my own body. And then I remember the best part is: that I found the artist in me! Check it out in my portfolio! Let me know what you think about my art in the comments!

Polypharmacy by Neil Blake

    I was doing some of my daily reading yesterday morning in Flipboard when I came upon an article with a title of the exact same question i’d Been asking myself, “Are MS Patients Using Too Many Medications?“. In the very first sentence it also introduces a new to me word, “Polypharmacy”,  that I’d never heard before but could totally and instantly relate to for the exact reason that Is also mentioned in the title, my MS. I haven’t quite finished reading it yet, as I wanted to write this and get it posted as soon as I could to hopefully start building a bit more of an audience, but am definitely going back to finish reading it.

Really? by Neil Blake

I've always taken public transit to and from work, especially once I realized how much less stress, expense, and in Vancouver at least, traffic I would have to deal with. Taking transit has always meant there was a lot ore walking in my life. When I was working as a software developer, I'd be sitting at a desk all day which meant that I wasn't getting a lot of exercise. 

Now that I am a lot more conscious of my health and my body, I set myself a daily step count of at least 13500 steps a day. I use my Apple Watch Activity App and Carrot Rewards app (if you want to earn more reqards, please use my user code "neilb6398") to keep track of all my step numbers everyday. 

Once I saw that I could earn Airmiles and Aeroplan miles just by walking, I'd joke I was going to walk to Hawaii! The only problem is I doin't think my shoes are going to make it. If i haven't somehow punctured a whole through the upper of the shoe like I did with my last brand new pair of Adidas shoes. Hopefully the shoe repair guys can fix them up real nice!